I had a follow up visit with the internal medicine specialist today. Since she has not been able to give a clear diagnosis or prognosis she wants to refer me to another doctor. She has discussed my case with one of the best endocrinologist in the area and they are both recommending I return to the Mayo Clinic for a consultation.
Theory is my symptoms relate to long-term use of prednisone for my abdominal mass (“sclerosing messenteritis”).
I went to Mayo back in 2006 to confirm a treatment plan. This consult will seek to understand changes in the mass over time—and learn of possible new treatment options.
We are adjusting the meds, I am feeling better, and encouraged –believing this is a good plan. Thanks for your prayers and encouragement.